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‘What Are Your Caregiving Experiences?’ 1,000 People’s Answers

Korea Womenlink Conducts Survey on Care Experiences and Attitudes


By Park Ju-yeon

Published Nov. 11, 2024

Translated by Marilyn Hook


 

“People don’t think of it as a job. Each time I ended up taking care of someone, I was always not working. There was always an implicit flow of, ‘Everyone else is making money. They have jobs. So it’s better for you to do it (the caregiving).’ There are always things like that when you take on care of someone. Why is that? In reality, if caregiving isn’t done properly and appropriately, people’s lives are at stake and their quality of life declines. Despite that, people somehow think it’s not necessary to pay caregivers.”—Participant 6, Korea Womenlink’s “Interviews on 10 People’s Caregiving Experiences”


Discussions about care are gradually becoming more frequent, and terms such as “care-centered”, “care crisis”, and “care nation” are appearing. Especially since the COVID-19 pandemic began in 2020, “care” has become an important keyword in our society. However, there is still not enough discussion about it.

On the evening of November 13, 2024, Korea Womenlink hosted “Revolutionary Love: Our Caregiving is Changing the World – A Forum on 1,030 People’s Caregiving Experiences and Alternative Solutions” at the Changbi Seogyo Building in Mapo-gu, Seoul. © Ilda


Korea Womenlink has announced that this year it began a three-year project called  “Revolutionary Love: Our Caregiving is Changing the World” that will seek to expand the conversation on care and transform our society into a care-centered one.


Carers’ biggest difficulties are lack of time, physical burden, and financial burden, while biggest obstacle to social transformation is long working hours


The participants in this survey about care experiences and attitudes, which was conducted online from May 28 to June 22, were 1,000 “citizens with experience with care.” The results were introduced at the forum by Chae Yun-jin, an activist from the Gender Equality and Welfare Team of Korea Womenlink, who began by saying, “The gender of the participants was 75.6% female, 24.3% male, and 0.1% other,” and, “The age distribution was 54.3% people in their 30s, 21.9% in their 20s, 18.6% in their 40s, 4.8% in their 50s, and 0.4% in their 60s or older.”

 

First, the people who have experience providing care. When asked whom they have cared for, 46.4% answered, “I only have experience caring for people who are my relatives by blood or legal marriage,” but 53.6% responded, “I have experience caring for various people.” The most common care recipients for this group (with multiple responses allowed) were “friends at 22.6%, pets at 22%, and partners (lovers/non-legal spouses) at 20.2%”.

 

As for those who have experience receiving care, 54.6% answered they had been cared for only by their blood or legal relatives, but 45.2% responded that they had experience receiving care from various people. Unsurprisingly, the most common givers of care (with multiple responses allowed) were “friends at 25.5%, and partners (lovers/non-legal spouses) at 19.2%.”

 

When asked what they thought about care, 55.6% responded that it was “absolutely necessary and meaningful work,” 29.6% responded that it was “everyone’s right,” and 28.3% responded that it was “everyone’s duty.”

 

The most common reason that caregiving was felt to be difficult was time. Not having enough time to spend on caregiving was selected by 43.9% of respondents, closely followed by the physical difficulty of care (43.7%), the financial burden involved (40.3%), and the difficult emotional labor involved (31.1%).”

 

Ms. Chae also said that in answer to the question of whether our society should transform into a care-centered one, “With 46.0% saying they strongly agreed and 42.4% saying they somewhat agreed, the total percentage of participants who agreed was 88.4%.”

 

As for the biggest obstacles to this transition that has such widespread support, they were “lack of time to provide sufficient care due to long working hours (22.7%), the idea that working is more valuable than providing care (17%), the perception that society must continue to grow through wage labor (16%), workplaces that are unfriendly toward care responsibilities (15%), the devaluation of care as ‘something that anyone can do with ease’ (9%), and the gender-role stereotype that caregiving is a women’s responsibility (6.6%).”

An image from the presentation at Korea Womenlink’s “Revolutionary Love: Our Caregiving is Changing the World – A Forum on 1,030 People’s Caregiving Experiences and Alternative Solutions” showing responses to the question “What is preventing our society from transforming from one centered around wage labor (production) into one centered around care (reproduction)?”
  


When asked what they would need in order to give and receive care in the future, the participants’ answers were, in this order: “social recognition of care (54.1%), securing time to provide care (36.1%), shortening working hours so that anyone can provide care while working (34.6%), social support for caregivers (29.9%), stable housing so that continuous care is possible in my neighborhood (24.8%), improving the working environment for care workers (21.9%), a public care system (16.7%), social recognition of caregiving relationships between non-legal family members (11.9%), men’s participation in caregiving (9.9%), and introduction and expansion of caregiving education (9.7%).”

 

Blood relatives and legal in-laws aren’t the only people in care relationships

 

In interviews with 10 people with care experience, there was some talk about blood relatives or legal in-laws, but also stories about care involving other types of people.

 

Ms. Chae said, “In a patriarchal society, caregiving has long been handled within the family, so it is easy to think of it as the family’s responsibility even today. However, handling caregiving within the limited resources of the family can easily lead to solo caregiving or result in forcing someone to become a caregiver as a duty or obligation.”

 

She continued, “Some interviewees had asked for care from people who were not their legal family, or had mutual caregiving relationships with such people,” adding, “Outside of relationships formed through legal marriages or childbirth, we heard about experiences of care that occurred between people in same-sex partnerships or intimate cohabiting relationships.”

 

However, the process of caring was not easy for these people. There were cases where they were excluded from or marginalized by society or institutions because they were not legal family members. There was “the discomfort of the other’s gaze toward those who were not legal relatives,” and times when “the two people exchanging care themselves had difficulties over how to structure their care relationship.”

 

“What I regret the most is that when I went to the hospital, (even though as [the patient’s] same-sex partner I was definitely their family member and guardian) I said I was a friend. I thought I should have clearly said, ‘I am their partner.’ Later, I went to a lecture given by a medical social worker and learned that the hospitals’ claiming that ‘only family members can be guardians’ is not a legal fact, but rather hospitals demanding family members in order to transfer some kind of responsibility. I regret that I could not be free from that frame. I just should have made it clear that I was this person’s guardian in some way.”—Participant 5

 

There are also cases where people cannot expect care from their family of origin or do not want to receive care from them, and so choose others to be their caregivers.

Ms. Chae explained, “Participant 8’s friend was a sexual minority who had undergone gender confirmation surgery without telling [the friend’s] parents, so relying on the friend’s family of origin for care would have been difficult. In the end, Participant 8, who had undergone the surgery first, took care of their friend.”

She continued, “Participant 3 realized that their younger brother was uncomfortable having his children see the course of their cancer treatment and that their mother was already exhausted from caring for her grandchildren. As a result, they gave up on receiving care from their family of origin and asked for help from their friends.”

In addition, “Participant 7 brought into their home and cared for a friend who could not be cared for by  their family of origin because they had been a victim of domestic violence.”

 

Ms. Chae said, “Although it’s not very visible socially, we have already been able to confirm that citizens are caring for and receiving care from each other beyond the boundaries of the legal family like this.”

To the question “Who would you like to give care to and receive care from in the future?” only 33.7% of respondents answered “only blood relatives or legal in-laws.” A much greater proportion of respondents said they would like to exchange care with a variety of people. Source: Presentation given at Korea Womenlink’s “Revolutionary Love: Our Caregiving is Changing the World – A Forum on 1,030 People’s Caregiving Experiences and Alternative Solutions”
 

 

‘It’s true that caregiving is dirty and difficult work’

 

Ms. Chae also said, “When we asked the interviewees, ‘What is care like?’, one interviewee said, ‘It’s a fight against poop.’” In fact, care is clearly difficult, and sometimes dirty and hard work. Also, when a person who usually gives care is sick, their carer may have to help with or take charge of housework in addition to nursing them.

 

“I think it was a little over a month after my mother was hospitalized. After waking up my younger sibling and sending them off to school, [I realized] my younger sibling had made the house look like a neglected barn or something. I thought I had done all the cleaning, but when I was vacuuming under their bed, I saw that they had left their empty plastic bottles there. When I found this last straw, I just cried. I thought, ‘Why do I have to do this?’ and felt it was so unfair, and I also thought a lot about my mom. She must have been doing all these things while I was away. So I cried a lot.”—Participant 9

 

“Another difficulty with caregiving is that it is unpredictable,” Ms. Chae explained. “This problem significantly reduces the quality of life of caregivers. They are always anxious because they don’t know when they will have to step in, and because it is difficult to make plans for their own lives and they have to be on standby all the time, this can easily lead to a sense of helplessness and become a factor that prevents them from doing regular paid work.”

 

In addition, Ms. Chae said the interviewees emphasized that “the tasks of planning and managing  are crucial to caring but not clearly visible.” She explained, “The tasks of checking for gaps in care, thinking about care methods that fit the condition or situation of the person receiving care, and the ‘planning labor’ of closely overseeing the surroundings and making plans on behalf of the person receiving care are absolutely necessary.” However, these tasks and labor are overlooked by society.

 

“But still—care changed my life”

 

Ms. Chae said, “The interviewees also seemed to have a lot to say about the good things they experienced while caring.” People who had experience caring for someone said, “We spent a lot of time together, talked a lot, got to know each other better, and felt closer because of the sense of going through difficult things together and the sense of becoming this person’s guardian.” Such experiences of caring also led to other practices of caring.

 

“When she was raising me, my grandmother always told me, ‘Whether you’re cleaning the kimchi pot or whatever, if something gets on your hands, just wash them. Don’t be afraid to touch something with your hands. Just wash them.’ She always taught me this. So (when I later had to take care of my grandmother and clean up her feces and urine), I just did it, thinking, ‘Just wash off the poop.’ It was nice to be able to use what my grandmother taught me to help her. I think it made raising my children easier, too.”—Participant 10

 

Another meaningful aspect is that through the caregiving experience, one can “gain a positive sense of self,” thinking, “Ah, I too am a good person who can take care of others.’”

 

“I used to think I was incapable of love. I thought I had no love inside me. I wanted to love and had a desire for love, but I couldn’t find the right person, and I think it was really hard not being able to love the people I was supposed to. But after taking care of my mother, I thought, ‘I am a person who can love like this,’ and especially when I got my cats, I felt like that— ‘I am a person who can love someone like this. I’m really good.’” —Participant 1

Part of Korea Womenlink’s online survey asked participants to fill in the blank in the sentence “Care is ________.” with whatever came to mind. “Love” was the most popular response, with “interest,” “consideration, “happiness,” “sacrifice,” and “a responsibility” also frequent.

 

When it’s hard to imagine your future self receiving care…

Men need to experience being responsible for care, not just ‘helping out’ with it 

 

The experience of care leads to many emotions and lessons, and many interviewees interpreted it positively. However, Ms. Chae said, “The majority of interviewees had difficulty imagining their future selves receiving care.” This may also mean that our society has a long way to go before it transitions to a care-centered society.

 

At the forum, speakers pointed out the need for care education, more chances to experience and discuss care, creating a ‘care network’, and the importance of men engaging in care. These changes should be made in conjunction with the breaking down of gender role stereotypes.

 

Participant 4, the only male participant among the 10 interviewees, spoke about the problem of men’s lack of experience in caregiving: “I tell other men that they should not simply help with childcare on the weekends, but that they should take parental leave and take full responsibility for their children. They need to have the experience of taking responsibility for caregiving and actively solving caregiving issues in order to understand the difficulties women go through with childcare and caregiving.”

 

 “Since my kid started going to daycare, I’ve gotten to know other moms and dads. But I can’t communicate with the dads. I don’t know. [It’s like,] ‘Wait, they take care of the kids together, why don’t they know this?’ I didn’t understand it at first, but they can’t seem to get what I’m saying. We can’t communicate at all. When I looked into why, I found out that they didn’t take parental leave. They’ve never been the one in charge of childcare. That’s why we can’t understand each other. Even if I try to talk to them, I end up talking to the moms. I can’t communicate with the dads. (Laughs) So I don’t do it as much.”—Participant 4

 

Ms. Chae said, “We need businesses that don’t exclude or punish men for participating in caregiving, as well as an active change in social attitudes,” and added, “Shortening working hours and changing attitudes in the workplace is also going to be important.”

 

In concluding her presentation, Ms. Chae suggested that we imagine “diverse forms of care”: “Let’s dream and talk about giving and receiving care with a more creative imagination.” If we do, she said, “Maybe we too will be able to give and receive decent care, don’t you think?”

 

 “When the sick person is being really negative, I hope that [the caregiver] doesn’t get too upset about it and instead simply interprets it as, ‘This person’s sick right now. Their irritation is probably hard for them to handle right now, too.’ And I hope that humor always exists between people. I also hope that I can be someone who creates humor. (Omitted) I think care is… diverse. I have received care from different people, and each person’s method was very different and their outward presentations were all different.”—Participant 3

 

Original Articlehttps://ildaro.com/10051

 

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